Presenting, JDRF Type One Summit.
JDRF welcomes type 1 diabetes community members and their families, of all ages and stages, to join us for a first-of-its-kind conference, with sessions designed for what you really care about!
JDRF Type One Summit brings together a stellar team of T1D experts, healthcare professionals, and researchers to share their expertise on the latest treatments, research breakthroughs, and the psychosocial aspects of living (and thriving) with T1D. Information stations will be open throughout the day for you to learn about research and clinical trials, and meet with medical device partners.
Whether you are dealing with a new diagnosis, have lived with T1D for many years, or care for someone with T1D, you’ll find value (and some new friends) at the Summit. JDRF Type One Summit caters for children, teens and adults with T1D, as well as parents, grandparents and carers. Kids (5+) can join our all-day activities program, or attend the sessions with carers.
JDRF is piloting this unique event in Sydney, with a view towards rolling out around Australia. We would like to acknowledge and thank Abbott for generously supporting the JDRF Type One Summit pilot,
as our 2017 presenting sponsor.
Dr. Kowalski was appointed JDRF International’s first Chief Mission officer in December 2014 and in this role leads the JDRF Research and Advocacy efforts. He serves as a key link between JDRF and the broad type 1 diabetes community. Dr. Kowalski combines his professional experience as a scientist with his personal experience of living with type 1 diabetes (T1D) for over 30 years to help guide and champion JDRF’s programs focused on creating a world without T1D.
Dr. Kowalski is an internationally recognised expert in the area of diabetes technologies and has been a leader of JDRF’s Artificial Pancreas Research Project, a multi-million dollar initiative that began in 2005 to accelerate the progress toward automated insulin-delivery systems. He has authored numerous articles on T1D research and was a co-author of the landmark study in The New England Journal of Medicine that revealed the effectiveness of continuous glucose monitors in T1D management.
Dr. Kowalski has travelled and spoken globally about diabetes research progress, and is known for his ability to translate science into easily understandable concepts. He has been a voice for T1D research in the popular media, appearing on The Martha Stewart Show, Fox Business, and NPR, among others. He is often quoted in the print media, including The New York Times, The Wall Street Journal and People magazine.
Dr. Kowalski often speaks about the importance of exercise and diet in better T1D control. While living with T1D, he has completed 17 marathons. Online, he often tweets about exercise and diabetes and how all people with T1D can live their lives without limits.
Elizabeth Davis is an Australian clinical researcher who has helped build an internationally-recognised research program in paediatric diabetes while maintaining a clinical load in paediatric endocrinology and diabetes. She currently co-directs a clinical research program with the aim of improving the lives of children with diabetes. The current focus of this program is nutrition, exercise and technology.
Dr Davis currently holds appointments as a Clinical Professor at the School of Paediatric and Child Health, University of Western Australia, Director of the Diabetes and Obesity clinical service at Princess Margaret Hospital for Children, and head of the Chronic Disease research focus area at Telethon Kids Institute.
Dr Jane Overland is recognised as one of Australia’s leading nurses in the field of diabetes and she lectures nationally and internationally in this area. She has a wealth of experience in diabetes clinical management, psychological support and education and she was Australia’s first Credentialled Diabetes Educator who specialises in type 1 diabetes to be awarded Nurse Practitioner status.
Dr Overland is also a Clinical Associate Professor with The School of Nursing, The University of Sydney, as well as the Director of Total Diabetes Care. She is passionate about helping people with diabetes live their lives to the full.
Peta Hoffmann is a clinical psychologist, who works with children, teens and their families living with a range of chronic illnesses, including type 1 diabetes. Passionate about supporting families adapting to the challenges of living with type 1 diabetes, Peta delivers individual, group and family therapy to children at all stages of their journey to build capacity and confidence in families faced with the management of this chronic condition.
Peta has a wealth of prior experience working in community organisations delivering conflict resolution, parenting and personal development programs, with teens at risk, prisoners and parents alike. She has worked solely with adolescents with chronic illnesses and complex mental health issues at the Canberra Hospital for the past year. Peta has a strong conviction that supporting parents and strengthening communities provides the best outcomes for children.
Informed by neurodevelopmental, behavioural, social and systems theories, Peta acknowledges that a child develops, not in isolation, but within family and social systems that afford opportunities for learning. Putting this understanding into practice in her own parenting, Peta strives to simply “Be the best mother she can be” and understands her children thrive when she is simply “good enough”.
Helen Edwards is a PhD Candidate looking at the wellbeing of women with type 1 diabetes during pregnancy and motherhood. Helen has qualifications in social work and diabetes education, and is a diabetes writer, blogger, advocate and speaker, and mum to three sons aged 23, 18 and 8 years old. Diagnosed with type 1 diabetes in 1979 when she was 12 years old, Helen has seen numerous developments in diabetes care and management, and changes in the way that we view people living with type 1 diabetes.
Helen ran an online diabetes counselling service and national charity until June 2016, and was a state finalist in the Australian of The Year Awards and the Telstra Business Woman of the Year Awards for this. She has written a children's picture book Diabetes Can't Stop Me, as well as a number of e-books.
Being told at diagnosis as a young girl that she would be likely to lose her legs, vision and kidneys, as well as probably be unlikely to have children, Helen has a particular interest in mental health and wellbeing and the interaction between health care professionals and people with diabetes.
Helen lives with a variety of health conditions that stem from living with type 1 for many years and has insight into the ways that type 1 diabetes can affect a person’s life. She is very involved in the diabetes online community and is followed by thousands.
Simone Collins, known to many as ‘Sim’, is a Paediatric and Adolescent Social Worker at The Diabetes Service - Canberra Hospital and Health Services. Simone is passionate about supporting children, young people and families living with type 1 diabetes.
Simone’s current role has afforded her the opportunity to work alongside countless families, at various stages of their type 1 diabetes journey. It has long been Simone’s goal to explore and maximise individual and collective strengths used to build confidence in families faced with the management of a chronic condition.
“You are the expert on your child and your family, which makes you an invaluable resource”
Simone has been involved in the facilitation of the ‘Tuning in to Kids’™ emotion coaching parenting program at Canberra Hospital. This evidence-based program, developed at The University of Melbourne, is designed to teach parents the skills of emotion coaching, to build resilience and emotional intelligence in their children, including those living with chronic conditions. This innovative program has been well received and continues to generate interest from families and health care professionals.
Simone is the first to admit that reaching out and asking for help when learning new skills at ‘break neck’ speed is…challenging. Accepting that parenting is unique, flawed and at times, downright comical, allows for greater appreciation of the warm, priceless and magical moments.
Simone choses to remember this at all times because she knows that one day there will be three adolescents living under her roof, which will require her to have a brilliant sense of humour!
Morning tea and refreshments will be available on arrival. A light sandwich lunchbox will be served from 11:35pm. The Novotel chef will provide carb counts for items, which will available on the day, to make dosing management as easy as we can for you.
There will be parking available at Novotel Parramatta, at a discounted rate of $10 all day. This is subject to availability.
The Novotel Parramatta has kindly offered a discounted rate of 15% off their public rate for bookings made up until 30 days prior to arrival. Please contact Novotel's Reservations Supervisor Nicole Martin at H8787-RE@accor.com or on 02 9890 0850. You can also access a buffet breakfast rate of $20.00 per person.
All rooms are subject to availability at time of booking.
For our pilot event, the Kids' Program is suitable for age 5+, but you're welcome to have your under five/s in the sessions with you. We'll consider any feedback we receive closely and if there's demand we'll absolutely consider childcare arrangements in future events.
Our onsite kids' activity program will run concurrently to the day’s sessions, to provide a place where children are cared for and supervised so parents can focus 100% on the sessions. It's also a great opportunity for kids to meet and play with others just like them.
We cater for two age groups, (5-11) and (12+) with a whole bunch of fun, age-appropriate and educational activities suitable for kids with type 1 diabetes, and their siblings too.
Kids can be checked in prior to the keynote address and will rejoin you for lunch. They'll then need to be rechecked in, with the Kids' Program finishing just prior to the Q&A panel session, which everyone can enjoy together. Maybe your youngster has a question of their own for the panel!
Absolutely! We’ll have staff monitoring the children at all times, along with a testing station and stocked hypo station. Your child will have their own lanyard with contact details for you, so we can get in touch if need be.
Yes, we’ll be recording the sessions (subject to each speaker's approval) and will make them available after the event. We'll also be streaming Dr Aaron Kowalski's keynote session via Facebook Live video for people to tune in all around the country. Keep an eye on social media or our newsletter for more details.
Sydney’s JDRF Type One Summit is our pilot event - the very first one for JDRF Australia. We have adapted the program from our US counterparts, who have seen great community engagement. We can’t wait to see if our NSW audience feels the same!
We’ll then investigate how this program can be rolled out across other Australian states.